China Was Right... ABBY

My head is spinning right now and I'm a little weak in the knees...


But God is so good and he is in charge of all of this... so... I know he has a plan and we will just move forward prayerfully...


We heard from Abby's doctor today. She has MDS- (myelodysplastic syndrome- sp?) such an odd diagnosis for such a young girl but it is possible and it our daughters diagnosis...
We are not really surprised... underneath it all we assumed China had the right diagnosis. BUT when there was no sign( or records) of a previous bone marrow biopsy we hoped maybe they were wrong...


They are continuing to do genetic and chromosomal studies which will provide us with the likelihood that this could turn into Leukemia and give us other important information.


There seems to be some urgency in treating her asap. They do not want it to turn into Leukemia so we need to get moving on treatment. The chelation treatment is to remove the iron in her body- that was supposed to be starting in May or June but we will now be starting this month.


It is good to have direction and to have some answers... We are so thankful to GOD!

Abby is acclimating to her new home! She has been with us since November 30th and home since December 17th. Finally after 6 weeks we are seeing who she truly is... and we really LOVE what we see!  We are getting past the whining and the slightly spoiled attitude to a completely delightful and sweet little girl. 


Because of her health situation I am guessing that they did whatever they could do to "make her happy" which in all honestly consisted of some qualities that are not desirable BUT instead quite challenging.


In a family with 8 little ones those qualities have had to be put aside and what we are seeing BLOOMING from our daughter is quite nice! God is so good!


She is now attempting to speak more english and repeating many phrases that the other children are saying. Instead of turning her nose up at food and pouting because it is not what she wants, she is trying different foods and happy with herself when she finishes! She no longer laughs at other children BUT now understands when we say "that is not funny". It is quite cute and I am sure her laughter was more nervous laughter and she was just uncertain how to respond BUT now she is more kind and desires to be more polite.


I believe she feels more secure- with 3 transfusions and many procedures later, her new Momma and Babba have not left her side! We no longer have hours and hours of tears when we arrive at the hospital but actually enjoy some quality time with her. She loves coming home to her family!! She knows it is always something she can look forward too!


This sweet girl deserve the best medical treatment we can give her! We are so thankful that God made it clear to us in May of 2011 that "she needs to come home"!


We prayerfully ask that you keep her in your prayers and support us as we continue on God's path...


Next post will be the results of Luke's CAT scan and the recommended treatment.