Abby had a bone marrow biopsy two days ago...
The Dr called today.
It wasn't exactly the news we wanted to hear.
Feeling kind of wiped out.
Emotionally drained.
Teary.
The U of Mn still feels that it may be MDS- Myelodysplastic Anemia. Which means Leukemia is in her future. Which means the only way to help her is a bone marrow transplant...
BMT's are tough... really really tough on the child and on the family.
It's even harder on a child that has lived in China during transfusions and her organs have been overloaded with iron. Even though we work hard to take the iron out(once the kids are home) there still is residual damage.
If her diagnosis is MDS she will have to have a BMT (bone marrow transplant)
The success rate 70%.
The younger the child the better.
The have requested that her bone marrow once again be sent to Boston Children's to be re- evaluated. It was Boston that diagnosed it as CSA- Congenitol Siderblastic Anemia six months ago.
Even then it was inconclusive.
They have not been able to find a genetic link to Abby's condition. They are trying again at Boston. That will help to better understand what they are dealing with and the more information we can get the better care plan we can have for Abby.
Each time they take a bone marrow sample- they get a different grouping of cells. This time they found more cells that looked dysplastic.
Even if her diagnosis is CSA there is a possibility it could turn into Leukemia but the chances are less than if it is MDS.
This is where Thalasemia is different than what Abby has...
Thalasemia does not turn into leukemia...
Confusing... I know...
The good news is Abby does not have to wear her backpack anymore!
She only has to take the oral medication daily for now!
And have transfusions every 3 weeks.
Our prayers are
that her diagnosis is CSA and not MDS.
Please pray that they find a 6 out of 6 point match for her.
The better the match the more likely it is to be successful.
Thank you so much...
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